patient centricity

Coalition formed to represent patient interests in digital health

Not enough is being done to ensure that patient voices are included in policymaking around digital health, says a new patient organisation in the UK, which aims to set that situation right. The Patient Coalition for AI, Data and Digital Tech in Health has brought together members of patient organisations, medical colleges and health charities …

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Taking a de-centralized approach to cure the Hepatitis C epidemic

This year’s World Hepatitis Day theme, ‘Hepatitis Can’t Wait,’ stresses the urgency of testing and treating viral hepatitis, as well as removing the stigma surrounding the disease and providing support for patients. Treatment for hepatitis C has evolved dramatically over the past decade. The introduction of direct-acting-antivirals has revolutionized the treatment landscape, leading the World …

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Pathway To Effective Stakeholder Mapping

Before developing any stakeholder engagement plan, it is crucial to have a clear understanding of all the relevant individuals and groups your product or device could directly impact or interest in some way. Stakeholders within the pharmaceutical world encompass many diverse groups and include payers, government bodies, standard-setting bodies, physicians, key opinion leaders, patients, and …

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Social Health: The Future of Healthcare Marketing

With advertisers preparing to spend up to $15 billion on influencer marketing by 2022, pharmaceutical and biotech companies are increasingly (and carefully) engaging trusted health social influencers to connect more authentically with consumers. As pharma starts to leverage a multitude of high-engagement channels like influencer marketing, online communities and virtual health services, the industry finds itself …

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Health Union Acquires WEGO Health

Health Union, the leader in building online health solutions for people living with chronic conditions, today announced that it has acquired WEGO Health, the world’s largest network of patient leaders – advocates, community leaders, creators and influencers. Combining Health Union’s targeted scale and depth in the condition experience with WEGO Health’s breadth of patient leaders …

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COUCH Health Engages Mark Duman as Chief Strategy Officer

COUCH Health, a patient engagement agency, announced the appointment of Mark Duman as its Chief Strategy Officer (CSO). Taking charge of strategy development and execution for COUCH Health, Mark will oversee the expansion of COUCH Health’s mission to contribute to inclusive clinical trials that prioritise the patient experience. Mark will report directly to CEO Ash …

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COUCH Health Finds Reasons Behind Underrepresentation of Minorities in US Clinical Trials

MANCHESTER, United Kingdom, May 20, 2021— COUCH Health, a patient engagement agency, has released new research exploring reasons behind the underrepresentation of ethnic minorities in US clinical trials. Also addressed are how clinical trial communication strategies can be improved to better engage people from diverse backgrounds and ethnicities. COUCH Health’s research findings suggest that participation from …

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Why relationships are key in rare disease patient engagement

Real-world data is a vital part of rare disease drug development, but to get a true picture of patients’ unmet needs pharma should take a broader view of their lived experiences, says Xperiome’s Jeremy Edwards. It is difficult to get data on rare diseases and the people who live with them by their very nature. …

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Deep Dive: Market Access

It’s fair to say this is the most interesting time ever for market access. Not only has COVID forced companies, governments and healthcare systems to work towards approving drugs and vaccines in record times, the sector is also facing an influx of digital therapeutics and advanced drugs that don’t fit neatly into existing access frameworks. …

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3 Considerations for Pharma Brand Strategy Success

Change is coming in the digital marketing world whether you’re ready or not. New challenges are presented for marketers as privacy measures tighten and we say goodbye to cookies, yet this impending farewell also presents an invaluable opportunity to rejuvenate your pharma brand strategy. As healthcare marketers prepare for the switch to flip, one thing is …

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Seqster bags $12m funding for patient data platform

Digital health player Seqster has raised $12 million in first-round financing that will be used to develop its data platform, which aims to put all a patient’s medical history in one easily-accessible place.  The Series A was led by OmniHealth Holdings, with repeat investor Takeda and Anne Wojcicki – chief executive and founder of genetic …

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MHRA launches patient involvement pilot for drug applications

The UK drugs regulator is now asking that all applications for new medicines or indications detail the efforts made to involve patients in the drug development process.  The voluntary scheme by the Medicines and Healthcare products Regulatory Agency (MHRA) aims to inject a dose of “patient centricity” into medicines development – something that has been …

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Making a big impact in small patient populations

Approximately 85% of rare diseases are genetic, offering significant opportunities to develop better treatments as our understanding of the human genome improves1. Advances in next-generation sequencing have shown that sequencing the whole genomes of large numbers of individuals in a standardized way can improve the diagnosis and treatment of patients with rare diseases. Scientists have …

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Making a big impact in small patient populations

Approximately 85% of rare diseases are genetic, offering significant opportunities to develop better treatments as our understanding of the human genome improves1. Advances in next-generation sequencing have shown that sequencing the whole genomes of large numbers of individuals in a standardized way can improve the diagnosis and treatment of patients with rare diseases. Scientists have …

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Continuity of Care in a Pandemic: Reflecting on the Rise of Telehealth

March 2021 comes with mixed emotions, as people across the United States reflect on one year of life in the era of COVID-19. From a rollercoaster of lockdown restrictions, isolation, mask-wearing and socially distancing, to finally experiencing a glimmer of hope with increasing vaccine distribution – it’s safe to say the past 12 months have …

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Continuity of Care in a Pandemic: Reflecting on the Rise of Telehealth

March 2021 comes with mixed emotions, as people across the United States reflect on one year of life in the era of COVID-19. From a rollercoaster of lockdown restrictions, isolation, mask-wearing and socially distancing, to finally experiencing a glimmer of hope with increasing vaccine distribution – it’s safe to say the past 12 months have …

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Patient involvement in trial design: looking to the future

COVID-19 has transformed the way we think about patient participation in trial design – but there are still many barriers to overcome in improving engagement. Speakers at the NIHR’s recent virtual event for the pharma industry discussed best practices for bringing patient insights into research. The pandemic has forced the industry to embrace virtual patient …

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Relationship Advice: What Patients Want HCPs to Know About Satisfaction

What aspects of a patient’s treatment matter most? For many, healthcare providers (HCPs) make a significant impact on how a person feels about their overall care plan; a positive HCP-patient relationship can help a person feel in control of their health and more prepared for the journey ahead, while a less than ideal HCP-patient relationship …

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Building early relationships: a gamechanger for pioneering rare disease treatment

Advocacy groups play a crucial role in both driving access to innovative treatment and services and educating patients and caregivers on novel breakthroughs. On average, it takes more than four years to receive an accurate diagnosis of a rare disease.1 This diagnostic odyssey has pushed patients and caregivers online to self-diagnose and learn more about …

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Roche and PatchAi partner on digital tool for cancer patients

Roche’s Italian subsidiary has joined forces with digital health startup PatchAi to roll out an app that aims to support people diagnosed with cancer. Roche and PatchAi have been working together on the Smart Health Companion (SHC), which was launched to oncology and haematology patients in July 2020, and will now step up their collaboration …

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5 Ways to Make Your Pharma Marketing More Personal

Personalization in marketing–the practice of understanding and delivering content when and where people are ready to accept it–in any industry is key, but perhaps even more so in healthcare. If we’ve learned anything as marketers in 2020, this new landscape demands personalization to break through the noise and reach and engage with people during their …

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Mistrust in medical research: a patient perspective

In medical research, trust has traditionally been hard-fought for. Terms like “lab rats” and “guinea pigs” are often used in conversations about clinical trials. For some communities, the historic unethical treatment of participants is also still a raw memory[1]. People tend to remember when things go wrong, and this casts doubt over procedures and leads …

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Unpacking rare diseases in the first edition of Delta magazine

Welcome to Delta – the new Fishawack Health magazine. We’ve chosen to focus our first edition of the magazine on a topic close to our hearts, rare diseases. Rare diseases represent an incredibly high unmet need, not only due to the lack of therapies and the practical difficulties in diagnosis, but also in patients’ desire …

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Boosting the impact of patient services

New research from Accenture has revealed that adoption of patient support services hasn’t improved since 2015 despite increasing pharma investment. The company’s Jennifer Spada tells us how companies can boost awareness of their programmes to improve patient outcomes. As part of its drive towards patient centricity, the pharma industry has increasingly been building patient support …

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2020 in review: COVID-19 and patient centric clinical trials

The trials and tribulations of 2020 have brought the vital role of research, pharma, and biotech into sharp focus. But how has the push to develop treatments and vaccines for SARS-CoV-2 affected the industry’s commitment to patient centricity? This time last year, researchers and industry players were working hard to embed patient centricity and engagement …

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Patient experiences are evolving. How can pharma keep up?

By listening to the people who are navigating this new landscape everyday.Integrating personal experiences and patient-reported data, Health Union recently hosted a one-day virtual event entitled The COVID-19 Effect: How Pharma Can Adapt to the Evolving Patient Experience, featuring real-time conversations between people living with chronic conditions and industry experts. The sessions focused on the …

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5 Things Patient Advocates Want Pharma and the Healthcare Industry to Know

The COVID-19 pandemic has presented many obstacles, yet the healthcare industry continues to march forward to meet the needs of patients. With physical distancing, new office protocols and the widespread use of telehealth, the patient experience is changing–particularly for people living with chronic conditions, who may require more regular access to care. To truly understand …

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Fostering Confidence in Newly Diagnosed Autoimmune Patients

When a person is newly diagnosed with an autoimmune condition, such as psoriasis or rheumatoid arthritis, it’s not uncommon for us to hear from them in our online health communities discussing fear or uncertainty, and seeking connection or support. The myriad of difficult decisions they are making around treatment options may foster a sense of self-doubt, and …

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Takeda to partner on patient-centric data with Seqster

Takeda has partnered with patient data firm Seqster in a drive to improve care through better access and understanding of patient-level data. The partnership follows Takeda’s investment in the US startup earlier this year. The pharma firm said it wants to leverage the company’s technology across its business San Diego-based Seqster has developed a portal …

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The COVID-19 Effect: How Pharma Can Adapt to the Evolving Patient Experience

Patient experiences are evolving. How can pharma keep up?By listening to the people who are navigating this new landscape everyday. Integrating personal experiences and patient-reported data, this one-day virtual event features real-time conversations between people living with chronic conditions and Health Union industry experts. Tune in to any or all of the sessions based on your interests and …

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Patient-to-Patient Supply for Cell Immunotherapies Summit

Achieving Standardization & Operational Excellence in Vein-to-Vein Supply As an increasing number of candidates enter the clinic and promise to be a mainstay in the future of cancer treatment, cell therapies pose unique supply chain challenges. From temperature and time sensitivity, to patient-facing delivery and chain of identity, these supply chain challenges must be overcome …

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Playing an Active Role in Treatment Yields More Confidence in Patients

When aiming to reach the people who will benefit most from a given medication or therapy, patients who play an active role in treatment decisions are often at the forefront of the conversation. But what does playing an active role in treatment really mean? While there is no concrete definition, a meta-analysis of Health Union’s …

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