Long-Term Care

Oct. 21 Web Event: Confronting Ageism in Health Care: A Conversation for Patients, Caregivers and Clinicians

The covid pandemic has provided more visibility for longstanding ageist attitudes and practices that run through the health care system, at times undermining the care and well-being of older adults in this country. KFF’s Kaiser Health News and The John A. Hartford Foundation will hold a 90-minute interactive web event on ageism in health care…More

In Focus Groups, Direct Care Workers and Unpaid Caregivers Describe Low-Wage, Physically-Challenging Work That is Often Mentally Overwhelming and Marked By Uncertainty

In recent focus group interviews, 32 paid direct care workers and unpaid caregivers who assist seniors and people with disabilities with self-care and household activities describe daily work defined by low pay, physical demands and mental stress that has been made worse by the pandemic. KFF conducted the four focus groups in July and August…More

Voices of Paid and Family Caregivers for Medicaid Enrollees Receiving HCBS

To help inform the ongoing debate, KFF conducted four focus groups in July and August 2021 with direct care workers and unpaid caregivers who provide HCBS, assisting seniors and people with disabilities with daily self-care and household activities. These focus groups are not necessarily generalizable to all caregivers, but can provide insight into their experiences …

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States Pull Back on Covid Data Even Amid Delta Surge

Two state government websites in Georgia recently stopped posting updates on covid-19 cases in prisons and long-term care facilities, just as the dangerous delta variant was taking hold. Data has been disappearing recently in other states as well. Florida, for example, now reports covid cases, deaths and hospitalizations once a week, instead of daily, as …

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Direct Care Workforce Shortages Have Worsened in Many States During the Pandemic, Hampering Providers of Home and Community-Based Services

During the pandemic many states have experienced worsening direct care workforce shortages that have affected providers of home- and community-based long-term care services (HCBS), according to early findings of a new KFF survey of Medicaid HCBS programs in all 50 states and the District of Columbia. Most states reported workforce shortages as the pandemic’s primary…More

State Medicaid Home & Community-Based Services (HCBS) Programs Respond to COVID-19: Early Findings from a 50-State Survey

This issue brief presents early findings from the most recent KFF survey of Medicaid HCBS programs in all 50 states and the District of Columbia. It focuses on state policies adopted in response to challenges posed by the pandemic, the pandemic’s impact on Medicaid HCBS enrollees and providers, and states’ initial plans for the new …

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Once Common, COVID-19 Deaths in Long-Term-Care Were Rare across Most States in June

Early in the COVID-19 pandemic, residents and staff at nursing homes and other long-term care facilities accounted for a huge share of COVID deaths, but a new KFF analysis finds that they were relatively rare events across the country in June. The analysis finds that 13 states and the District of Columbia in June reported…More

COVID-19 Cases and Deaths in Long-Term Care Facilities through June 2021

This data note examines state-level data on COVID-19 cases and deaths in long-term care facilities through June prior to the recent rise in cases and deaths nationally linked to the spread of the Delta variant. It finds long-term care deaths down 96% from their peak in December as the nation’s vaccination effort began.

State Options to Expand Medicaid HCBS: Examples & Evaluations of Section 1115 Waivers

States are currently developing plans to access an increased federal matching rate (“FMAP”) for Medicaid HCBS spending established in the American Rescue Plan Act (ARPA) of 2021. In the future, states may also be able to access increased HCBS funds proposed in the Biden Administration’s American Jobs Plan and the Better Care Better Jobs Act …

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Paying Billions for Controversial Alzheimer’s Drug? How About Funding This Instead?

If you could invest $56 billion each year in improving health care for older adults, how would you spend it? On a hugely expensive medication with questionable efficacy — or something else? This isn’t an abstract question. Aduhelm, a new Alzheimer’s drug approved by the Food and Drug Administration last month, could be prescribed to …

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Desperate for Home Care, Seniors Often Wait Months With Workers in Short Supply

CASTINE, Maine — For years, Louise Shackett has had trouble walking or standing for long periods, making it difficult for her to clean her house in southeastern Maine or do laundry. Shackett, 80, no longer drives, which makes it hard to get to the grocery store or doctor. Her low income, though, qualifies her for …

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Caring for an Aging Nation

USE OUR CONTENT This story can republished for free. Please contact [email protected]org for embed codes. Table of Contents A Variety of Services Booming Number of Seniors The Cost of Long-Term Care Services The Physical – and Financial – Burden The $61 Billion Price Tag Health care for the nation’s seniors looms large as the baby-boom …

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Let’s Build Some LTC Infrastructure!

By KIM BELLARD Quick now: what’s the biggest single component of President Biden’s infrastructure plan (a.k.a The American Jobs Plan)?   Fixing roads and bridges?  Upgrading the power grid?  Preparing the nation for electric vehicles?  Giving all Americans access to broadband?  Wrong.  If you guessed home and community services, you’ve been paying attention.  President Biden is …

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Public health, racial equity, climate action drive Biden’s budget requests for healthcare

President Joe Biden has submitted his discretionary budget for 2022 to Congress. Among its healthcare provisions are funding requests for the CDC, mental health and social determinants of health programs. But there are some unusual requests as well, such as funding for an Office of Climate Change and Health Equity.

Biden Seeks $400 Billion to Buttress Long-Term Care. A Look at What’s at Stake.

There’s widespread agreement that it’s important to help older adults and people with disabilities remain independent as long as possible. But are we prepared to do what’s necessary, as a nation, to make this possible? This story also ran on NPR. It can be republished for free. That’s the challenge President Joe Biden has put …

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How One State’s Public Health Defunding Led to Vaccination Chaos

ST. LOUIS — Missourians have driven hours to find vaccines in rural counties — at least those with cars and the time. Tens of thousands of doses are waiting to be distributed, slowly being rolled out in a federal long-term care program. Waitlists are hundreds of thousands of people long. Black residents are getting left …

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Covid-19 long-hauler clinics offer a ‘medical home’ for patients on uncharted journey

There is a growing demand for centralized care for Covid-19 long-haulers — that is, patients who had Covid-19 and recovered but continue to experience symptoms. Health systems are setting up clinics specifically for this patient population, which comes with its own set of opportunities and challenges.

Texas Winter Storm Exposes Gaps in Senior Living Oversight

HOUSTON — When the big, red and extremely loud fire alarm went off in Maria Skladzien’s apartment, the 74-year-old ventured into the hallway with fellow residents of her Houston-area senior living community. The brutal winter storm that swept through Texas had knocked out power, which, in turn, disrupted water to the four-story building. The blaring …

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Reopening of Long-Term Care Facilities Is ‘an Absolute Necessity for Our Well-Being’

For nearly a year, nursing homes and assisted living centers have been mostly closed to visitors. Now, it’s time for them to open back up and relieve residents of crushing isolation, according to a growing chorus of long-term care experts, caregivers, consumer groups and physicians. This story also ran on CNN. It can be republished …

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State Variation in Medicaid LTSS Policy Choices and Implications for Upcoming Policy Debates

This brief takes a closer look at multiple measures beyond waiver waiting lists to evaluate state choices about optional Medicaid eligibility pathways, spending, and services for seniors and people with disabilities as of 2018. The analysis draws on several KFF resources, including 50-state surveys of Medicaid financial eligibility pathways for seniors and people with disabilities, …

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Companies Pan for Marketing Gold in Vaccines

This story also ran on NBC News. It can be republished for free. For a decade, Jennifer Crow has taken care of her elderly parents, who have multiple sclerosis. After her father had a stroke in December, the family got serious in its conversations with a retirement community — and learned that one service it …

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Despite Efforts to Slow the Spread of the Virus in Long-Term Care Facilities, KFF Analysis Finds Many States Experienced the Worst COVID-19 Outbreaks and Highest Number of Deaths in December

For some regions of the country, recent months have brought the worst COVID-19 outbreaks in long-term care facilities since the start of the pandemic, a new KFF analysis of state-reported cases and death shows, underscoring the importance of current efforts to vaccinate this high priority group. The novel coronavirus has had a disproportionate impact on…More

January 14 Web Event: A Shot in the Arm For Long-Term Care Facilities? Early Lessons from the COVID-19 Vaccine Rollout to High Priority Populations

With the pandemic taking a heavy toll among older Americans, the Centers for Disease Control and Prevention and most states have placed a high priority on vaccinating residents and staff of long-term care facilities. People in nursing homes and other long-term care settings account for 8 percent of cases but 40 percent of deaths from…More

New National and State Estimates for Recommended COVID-19 Vaccination Priority Population

This month the Centers for Disease Control and Prevention (CDC) adopted a recommendation that health care workers and long-term care residents should be the first to receive the COVID-19 vaccine once it is authorized or approved by the FDA. A new KFF analysis estimates there are 15.5 million people working in health care settings who…More

PointClickCare Acquires Collective Medical for $650M to Create to Largest Combined Acute and Post-Acute Care Network

What You Should Know: – PointClickCare announces its intent to acquire Collective Medical to create the largest combined acute and post-acute care network in North America for $650M. – Collective Medical’s platform connects more than 1,300 hospitals, thousands of ambulatory practices and long-term post-acute care (LTPAC) providers, as well as accountable care organizations (ACOs) and …

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Potential Health Policy Administrative Actions Under President Biden

This brief outlines the potential health policy actions that President Biden could take using executive authority, based on campaign pledges, and actions that would reverse or modify regulations or guidance issued by the Trump Administration.

Long-Term Care Workers, Grieving and Under Siege, Brace for COVID’s Next Round

In the middle of the night, Stefania Silvestri lies in bed remembering her elderly patients’ cries. “Help me.” “Please don’t leave me.” “I need my family.” Months of caring for older adults in a Rhode Island nursing home ravaged by COVID-19 have taken a steep toll on Silvestri, 37, a registered nurse. She can’t sleep, …

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Prayers and Grief Counseling After COVID: Trying to Aid Healing in Long-Term Care

A tidal wave of grief and loss has rolled through long-term care facilities as the coronavirus pandemic has killed more than 91,000 residents and staffers — nearly 40% of recorded COVID-19 deaths in the U.S. And it’s not over: Facilities are bracing for further shocks as coronavirus cases rise across the country. Workers are already …

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Health Care and the 2020 Presidential Election

This side-by-side comparison examines President Trump’s record and former Vice President Biden’s positions across a wide range of key health issues, including the response to the pandemic, the Affordable Care Act marketplace, Medicaid, Medicare, drug prices, reproductive health, mental health and opioids, immigration and health coverage, and health care costs.

State Actions to Sustain Medicaid Long-Term Services and Supports During COVID-19

As the COVID-19 pandemic continues, states have taken a number of Medicaid policy actions to address the impact on seniors and people with disabilities, many of whom rely on long-term services and supports (LTSS) to meet daily needs and are at increased risk of adverse health outcomes if infected with coronavirus.

Hotspot States See More COVID Cases in Nursing Homes

In his Axios column, Drew Altman discusses new data on the surge of new infections in long-term care facilities in COVID-19 hotspots. The dominant narrative about the Sunbelt surge in new cases is that the infected population is younger, but he says that’s not the whole story. There is also a spike in cases in …

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Rising Cases in Long-term Care Facilities Are Cause for Concern

LTC cases in hotspot states are increasing at 4x the rate as LTC cases in non-hotspot states. Media has largely focused on the share of cases attributed to a younger population. However, increased cases in long-term care facilities are cause for concern, given that nearly half of all COVID-19 deaths have been in long-term care …

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